My husband was diagnosed with kidney disease 11 years ago. At the time he was being treated for fibromyalgia. His doctor had mis-diagnosed him. He had been losing weight like crazy, and was so sick. Couldn't put his hands above his head to put a shirt on, had difficulty doing a lot of things, and through all that time he missed one day of work.
But as the time went on he feel more and more ill. I decided that he needed to change doctors, to my doctor. Once we changed Dr's he was seen by my Doctor then sent within a week to a specialist, who sent him directly to the hospital for tests, when they came out with some results they said, "your kidney's are failing", and we didn't know what to think. He was in the hospital for 2 weeks, at which time we were expecting our first child. We were devistated.
After the 2 weeks of test, upon test, we were told her had Vasculitis, a disease of the blood vessels that go after different organs in your body, in my husbands case, it went after his kidney's. The disease at that moment was active and they needed it to go into remission, so he was on many medications, including prednisone, and cytoxin. We were told once he started cytoxin, we would never have any more children, which we both wanted more. (we had difficulty conceiving our first). So he started the medication and had a leave from work to try and get back on the mend. Things started to go well for my husband, the disease went into remission, and of coarse was seen by the specialist on a regular basis. This specialist in our eyes, was the "God" of specialists. A wonderful, suppostive, realistic doctor.
Since then my husband has had different illnesses, but has come through them with no problems. Today we went to the doctors as his creatnine level keeps going up and we found out that his kidneys are working at 15%, this means it's time to start thinking about dialysis and hopefully a transplant. It's a fightning thought, to have to make decisions such as this, life changing decisions. To look at him you'd never know anything was wrong. My husband really doesn't want to speak about the decision yet, as we need to go to dialysis and transplant education, and that is where reality will set in and the talking about this will start.
All I know is that I pray that somewhere out there is a kidney just for him, to help him, and our family. No one ever knows what life has planned for them, so please live life, enjoy life, and make the most of your time. Make sure you smile and laugh everyday, I'm sure that is the best medicine.
I'll keep you posted!